Not an actual patient
Systemic mastocytosis (SM) is a part of a larger collection of conditions called mast cell diseases. The independent resources below may be helpful in providing additional information about SM as well as other mast cell disorders.
This organization is dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation.
Global Genes is committed to providing information, resources, and connections to all communities affected by rare disease.
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
TMS is dedicated to providing support to patients, families, and medical professionals in our community and to leading the advancement of knowledge and research in mast cell diseases through education, advocacy, and collaboration.
These resources are included as a reference for patients and do not imply endorsement of the company or its products by the groups listed. Blueprint Medicines is not affiliated with and does not endorse any particular advocacy group. We make no guarantees about the accuracy of the information provided on these websites or the quality of support provided. Descriptions have been provided by the corresponding organizations.
There is ongoing research in SM. Learn more about clinical trials.
To help prepare for a conversation with your doctor about the symptoms you are experiencing, download the doctor discussion guide.
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This website does not provide medical advice and is for educational purposes only.
Blueprint Medicines is a biopharmaceutical company studying oncology, hematology, and rare diseases.
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